- Llahana, S. and Yuen, K.C.J. (2024). Development and validation of a novel treatment adherence, satisfaction and knowledge questionnaire (TASK-Q) for adult patients with hypothalamic-pituitary disorders. Pituitary. doi:10.1007/s11102-024-01425-9.
- Doyle, L.M., Ahmed, S.F., Davis, J., Elford, S., Elhassan, Y.S., James, L. … Krone, N.P. (2024). Service evaluation suggests variation in clinical care provision in adults with congenital adrenal hyperplasia in the UK and Ireland. Clinical Endocrinology. doi:10.1111/cen.15043.
- Llahana, S., Mulligan, K., Hirani, S.P., Wilson, S., Baldeweg, S.E., Grossman, A. … Newman, S. (2023). Using the behaviour change wheel and person-based approach to develop a digital self-management intervention for patients with adrenal insufficiency: the Support AI study protocol. Frontiers in Endocrinology, 14. doi:10.3389/fendo.2023.1207715.
- Mehmet, B., Gillard, S., Jayasena, C.N. and Llahana, S. (2022). Association between domains of quality of life and patients with Klinefelter syndrome: a systematic review. European Journal of Endocrinology, 187(2). doi:10.1530/eje-21-1239.
- Dwyer, A.A., Héritier, V., Llahana, S., Edelman, L., Papadakis, G.E., Vaucher, L. … Hauschild, M. (2022). Navigating Disrupted Puberty: Development and Evaluation of a Mobile-Health Transition Passport for Klinefelter Syndrome. Frontiers in Endocrinology, 13. doi:10.3389/fendo.2022.909830.
- Jayasena, C.N., Anderson, R.A., Llahana, S., Barth, J.H., MacKenzie, F., Wilkes, S. … Quinton, R. (2022). Society for Endocrinology guidelines for testosterone replacement therapy in male hypogonadism. Clinical Endocrinology, 96(2), pp. 200–219. doi:10.1111/cen.14633.
- Luger, A., Broersen, L.H.A., Biermasz, N.R., Biller, B.M.K., Buchfelder, M., Chanson, P. … Dekkers, O.M. (2021). ESE Clinical Practice Guideline on functioning and nonfunctioning pituitary adenomas in pregnancy. European Journal of Endocrinology, 185(3). doi:10.1530/eje-21-0462.
- Mehmet, B. and Llahana, S. (2021). Low intelligent quotient (IQ) in patients with Klinefelter Syndrome are associated with impaired quality of life: A systematic review with meta-analysis. Endocrine Abstracts. doi:10.1530/endoabs.73.aep583.
- Mehmet, B. and Llahana, S.V. (2021). Factors Impacting Quality of Life in Patients With Klinefelter Syndrome: A Systematic Review with Narrative Synthesis and Meta-Analysis. Journal of the Endocrine Society, 5(Supplement_1). doi:10.1210/jendso/bvab048.1542.
- Adeleke, A. and Llahana, S. (2020). Experiences and perspectives of nursing students on self-management promotion in patients with coronary heart disease. British Journal of Cardiac Nursing, 15(11), pp. 1–12. doi:10.12968/bjca.2020.0072.
- Richens, Y., David, A.L., Llahana, S., Gessler, S., James, C.P. and Liao, L.-.M. (2020). Feasibility of use of the anxiety thermometer in antenatal services. British Journal of Midwifery, 28(8), pp. 468–474. doi:10.12968/bjom.2020.28.8.468.
- Yuen, K.C.J., Llahana, S. and Miller, B.S. (2019). Adult growth hormone deficiency: clinical advances and approaches to improve adherence. Expert Review of Endocrinology & Metabolism, 14(6), pp. 419–436. doi:10.1080/17446651.2019.1689119.
- Miranda Galarraga, M. and Llahana, S. (2018). Quality of life for carers of people with type 2 diabetes: A literature review. Journal of Diabetes Nursing, 22(1).
- Llahana, S. and Thomas, N. (2016). Structured nursing educational programs improve quality of life outcomes in patients with Cushing’s syndrome. Endocrine, 53(1), pp. 1–3. doi:10.1007/s12020-016-0934-5.
- Andela, C.D., Scharloo, M., Ramondt, S., Tiemensma, J., Husson, O., Llahana, S. … Biermasz, N.R. (2016). The development and validation of the Leiden Bother and Needs Questionnaire for patients with pituitary disease: the LBNQ-Pituitary. Pituitary, 19(3), pp. 293–302. doi:10.1007/s11102-016-0707-4.
- Chapman, S.C.E., Llahana, S., Carroll, P. and Horne, R. (2016). Glucocorticoid therapy for adrenal insufficiency: nonadherence, concerns and dissatisfaction with information. Clinical Endocrinology, 84(5), pp. 664–671. doi:10.1111/cen.12991.
- Phelan, N., Conway, S.H., Llahana, S. and Conway, G.S. (2012). Quantification of the adverse effect of ethinylestradiol containing oral contraceptive pills when used in conjunction with growth hormone replacement in routine practice. Clinical Endocrinology, 76(5), pp. 729–733. doi:10.1111/j.1365-2265.2011.04277.x.
- Llahana, S.V. and Hamric, A.B. (2011). Developmental phases and factors influencing role development in diabetes specialist nurses: a UK study. European Diabetes Nursing, 8(1), pp. 18–23. doi:10.1002/edn.169.
- Llahana, S., Kamps, L. and Vrijhoef, B. (2009). Study on European nurses in diabetes (SEND): Invitation to participate. Journal of Diabetes Nursing, 13(1), pp. 6–7.
- Llahana, S. (2004). Llahana, S.V., Coates, V.E. & Poulton, B.C. (2004). Exploring the relevance of the DSN role to the Greek healthcare setting. Journal of Diabetes Nursing, 8 (4): 145-151. .
- Llahana, S. (2003). Llahana, S.V., Coates, V.E. & Poulton, B. C. (2003). Educational preparation of the DSN in the UK. Journal of Diabetes Nursing, 7 (1): 7 – 11. .
- Llahana, S. (2003). Llahana, S.V. & Gerogianni, G.K. (2003). Exploring the role of the Diabetes Specialist Nurse: role components and activities. Nosileftiki, 42 (1): 82 – 96. [Greek]. .
- Llahana, S. (2002). Llahana, S.V. & Gerogianni, G.K. (2002). The Clinical Nurse Specialist: role definition and operationalisation. Nosileftiki, 41 (1): 42 – 52. [Greek]. .
- Llahana, S.V., Poulton, B.C. and Coates, V.E. (2001). The paediatric diabetes specialist nurse and diabetes education in childhood. Journal of Advanced Nursing, 33(3), pp. 296–306. doi:10.1046/j.1365-2648.2001.01665.x.
- Llahana, S. (2001). Llahana, S.V., Coates, V.E. & Poulton, B. C. (2001). Survey: role components, functions and activities of the DSN. Journal of Diabetes Nursing, 5 (6): 181 – 187. .
- Llahana, S. (2001). Llahana, S.V., Poulton, B.C. & Coates, V.E. (2001). Role development of the diabetes specialist nurse: a pilot study. Journal of Diabetes Nursing, 5 (4): 114 – 118. .
- Llahana, S. (2001). Llahana, S.V. (2001). The relationship between theory, research and practice in nursing: a literature review. Nosileftiki, 40 (1): 24 – 33. [Greek]. .
Contact details
Address
Northampton Square
London EC1V 0HB
United Kingdom
Personal links
About
Overview
Dr Sofia Llahana joined City, University of London in November 2018 as a Senior Lecturer, Education and Research, in Advanced Clinical Practice. She previously worked as a Consultant Nurse in Endocrinology and Independent Nurse Prescriber at University College London Hospitals NHS Foundation Trust where she continues to maintain an honorary position and a large portfolio of research projects.
Sofia is the Lead Editor of the recently published textbook of Advanced Practice in Endocrinology Nursing by Springer which is a multidisciplinary collaboration of 115 authors across the globe and includes 69 chapters. This is the first ever endocrine nursing book providing a comprehensive resource for paediatric and adult nurses.
Sofia’s past working experience includes roles such as clinical academic research fellow, senior teaching fellow, senior research nurse, clinical nurse specialist in diabetes and endocrinology, diabetes educator, ward manager and staff nurse. She worked in clinical and academic settings in the UK, Ireland, Greece and Finland and has held consultancy roles for several pharmaceutical, professional and non-profit organisations.
Sofia is internationally recognized for her clinical expertise, research and leadership in Endocrinology Nursing. She established the European Network of Endocrine Nurses within the European Society for Endocrinology (ESE) in 2013 and is the current Chair of the ESE Nurses Committee and member of the ESE Executive Committee. She is a Board Member of the Federation of International Nurses in Endocrinology (FINE) and one of the five founding members initiating FINE in 2014, a past member of the UK Nurses Committee in the Society for Endocrinology. Sofia is the only nurse member in the Scientific Committee of the International Congress in Men’s Health organized by the Postgraduate International School of Men’s Health (PRISM).
Qualifications
- Postgraduate Certificate in Healthcare Leadership, Open University, United Kingdom, Apr 2017
- Non-Medical Independent Prescribing (V300), London South Bank University, United Kingdom, Sep 2006 – Mar 2007
- Post-graduate Award (MSc level) “Diabetes in the Elderly”, University of Warwick, United Kingdom, Apr 2003
- • Post-graduate Course (PGDip level) “Multi-professional Management of Diabetes", University of Ulster, United Kingdom, May 2001
- DNSc (Doctor of Nursing Science), University of Ulster, United Kingdom, Oct 1998 – May 2002
- MSc (with distinction) in Advanced Nursing, University of Ulster, United Kingdom, Oct 1998 – Sep 1999
- BSc (Hons) in Nursing, National Technical University of Athens, Greece, Oct 1993 – Sep 1997
- Registered Nurse, Nursing and Midwifery Council, United Kingdom
- Non-Medical Independent Prescriber, Nursing and Midwifery Council
Postgraduate training
- Clinical Academic Research Fellow, University College London Hospitals NHS Foundation Trust, London, United Kingdom, Jan – Jul 2018
- NIHR Research Fellow, University College London, London, United Kingdom, May 2015 – Apr 2016
Employment
- Hon Consultant Nurse in Endocrinology, University College London Hospitals NHS Foundation Trust, Nov 2018 – present
- Senior Lecturer, Education and Research, City, University London, Oct 2018 – present
Memberships of professional organisations
- Chair of ESE Nurses Committee and member of ESE Executive Committee, European Society for Endocrinology (ESE)
- Board member, Federation of International Nurses in Endocrinology (FINE)
- Member of the Scientific Committee of the International Congress in Men’s Health, Postgraduate International School of Men’s Health (PRISM)
- Member, Society of Endocrinology
- Member of the Clinical Advisory Board, AdrenalNet
- Member of the Clinical Advisory Board, World Association of Pituitary Organasations (WAPO)
Languages
Greek, Modern (1453-) (can read, write, speak, understand spoken and peer review) and Italian (can understand spoken).
Research students
2nd supervisor
- Brien Mehmet, Research Student
Publications
Featured publications
- Llahana, S., Follin, C., Yedinak, C. and Grossman, A. (Eds.), (2019). Advanced Practice in Endocrinology Nursing. Springer International Publishing. ISBN 978-3-319-99815-2.
Publications by category
Books (6)
- Llahana, S. (2019). Part XIII: Advanced Practice Nursing in Endocrinology.
- Llahana, S. (2019). Part V: The Adrenal Gland.
- Llahana, S. and Conway, G.S. (2019). Part VI: Female Endocrinology and Reproduction.
- Dwyer, A.A. and Llahana, S. (2019). Part VII: Male Endocrinology and Reproduction.
- Llahana, S., Follin, C., Yedinak, C. and Grossman, A. (2019). Preface.
- Llahana, S.V. (2005). A Theoretical Framework for Clinical Specialist Nursing An Example from Diabetes. Sofia Llahana. ISBN 978-1-903877-36-4.
Chapters (9)
- Llahana, S. (2021). Sofia Llahana, The role of nurses in supporting self-management for patients with hypopituitarism . In Jürgen Honegger, Martin Reincke and Stephan Petersenn editors: Pituitary Tumors, UK: Academic Press, 2021, pp. 157-171. Jürgen Honegger, Martin Reincke and Stephan Petersenn editors: Pituitary Tumors, UK: Academic Press, 2021 Elsevier. ISBN 978-0-12-819949-7.
- Llahana, S. (2021). The role of nurses in supporting self-management for patients with hypopituitarism. Pituitary Tumors (pp. 157–171). Elsevier. ISBN 978-0-12-819949-7.
- Llahana, S., Zopf, K., Mitchelhill, I. and Grossman, A. (2019). Prevention and Management of Adrenal Crisis in Children and Adults. Advanced Practice in Endocrinology Nursing (pp. 1183–1205). Springer International Publishing. ISBN 978-3-319-99815-2.
- Llahana, S. (2019). Role Development and Performance Facilitators in Advanced Practice Nursing. Advanced Practice in Endocrinology Nursing (pp. 1303–1319). Springer International Publishing. ISBN 978-3-319-99815-2.
- Llahana, S., Dwyer, A.A. and Yedinak, C. (2019). Conceptualization, Definition, and Competencies of Advanced Practice Nursing with a Focus on Endocrinology. Advanced Practice in Endocrinology Nursing (pp. 1281–1302). Springer International Publishing. ISBN 978-3-319-99815-2.
- Llahana, S. (2019). Testosterone Therapy in Adult Men with Hypogonadism. Advanced Practice in Endocrinology Nursing (pp. 885–902). Springer International Publishing. ISBN 978-3-319-99815-2.
- Holden, F., Akers, C. and Llahana, S. (2019). Diagnosis and Management of Erectile Dysfunction in Men. Advanced Practice in Endocrinology Nursing (pp. 925–941). Springer International Publishing. ISBN 978-3-319-99815-2.
- Llahana, S., Marland, A., Pantovic, M. and Popovic, V. (2019). Hypopituitarism and Growth Hormone Deficiency in Adults. Advanced Practice in Endocrinology Nursing (pp. 469–494). Springer International Publishing. ISBN 978-3-319-99815-2.
- Llahana, S., Mitchelhill, I., Yeoh, P. and Quinkler, M. (2019). Diagnosis and Management of Adrenal Insufficiency in Children and Adults. Advanced Practice in Endocrinology Nursing (pp. 705–736). Springer International Publishing. ISBN 978-3-319-99815-2.
Conference papers and proceedings (12)
- Llahana, S. (2018). Llahana, S. (2018). The role of endocrine nurse in running a nurse-led service in men’s health: a model of Advanced Practice. International Congress in Men’s Health, October 6 – 7, Vienna, Austria.
- Llahana, S. (2017). Llahana, S. (2017) Paediatric to adult transition for patients with Klinefelter syndrome. Invited Speaker, PRISM-ICMH Global Symposium on Men's Health, October 6 – 7, Warsaw, Poland.
- Llahana, S. (2017). Llahana, S. (2017) Developing a European Position Statement for the role of the Endocrine Nurse in Adrenal Insufficiency. Invited Speaker, European Congress of Endocrinology, May 19 – 22, Lisbon, Portugal.
- Llahana, S. (2016). Llahana, S. (2016) Personalised Medicine and Adherence to Treatment in Men. Invited Speaker, PRISM International Congress on Men's Health, November 4 – 5, Berlin, Germany.
- Llahana, S. (2016). Llahana, S. (2016) Patient education, treatment concerns and non-adherence: the need for change in Adrenal Insufficiency. Invited Speaker, British Society for Endocrinology Annual meeting, November 7 – 9, Brighton, UK.
- Llahana, S. (2016). Llahana, S., Philips D., Webber J., Chapman S., Carroll P., McBride P., Horne R. (2016) Development and evaluation of the acceptability of new materials to address individualized needs to support self-management for patients with adrenal insufficiency. Poster presentation, British Society for Endocrinology Annual meeting, November 7 – 9, Brighton, UK.
- Llahana, S. (2016). Llahana, S. (2016) Support needs for patients with adrenal insufficiency. Invited Speaker, New Insight in Adrenal Insufficiency, 1st Expert European Summit by Shire International, January 22 – 23, Berlin, Germany.
- Llahana, S. (2015). Llahana, S. (2015) Bringing Endocrine Nurses together: the development and role of the European Society for Endocrinology (ESE) Nurses Network. Invited speaker, European Specialist Nurses Organizations (ESNO) Summit 2015, November 5 – 6, Brussels, Belgium.
- Llahana, S. (2015). Llahana, S., Mumuni, A., Osz, M., Baber, M., Baldeweg, S., Gannon, G. & Conway, G. (2015) A care service model for cost effective and structured individualised treatment choice for GH replacement therapy. Poster presentation, British Society for Endocrinology Annual meeting, November 2 - 4, Edinburgh, UK.
- Hood, G.A. and Llahana, S.V. (2008). A meeting report from the Federation of European Nurses in Diabetes (FEND). doi:10.1002/edn.123
- Llahana, S. Llahana, S., Conway, G., Mumuni, A., Baldeweg, S., Osz, M., and Horne, R. (2018). Patients’ beliefs and concerns about growth hormone replacement therapy are associated with their satisfaction with treatment, medication side effects and quality of life. Accepted for Poster Presentation, abstract ID: 911. 18th International Congress of Endocrinology, December 1 – 4, Cape Town, South Africa.
- Llahana, S. Llahana, S. (2018) Transition of patients with hypogonadism from paediatric to adult care service. Invited Speaker, European Congress of Endocrinology, May 20-22, Barcelona, Spain.